By Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad
This ebook explores implicit offerings made by way of researchers, coverage makers, and funders relating to who merits from society's funding in overall healthiness learn. The authors concentration in particular on genetic study and consider even if such examine has a tendency to minimize or exacerbate present health and wellbeing disparities. utilizing case examples to demonstrate the problems, the authors hint the trail of genetics study from discovery, via improvement and supply, to health and wellbeing results. issues comprise breast melanoma screening and therapy, autism examine, pharmacogenetics, prenatal checking out, child screening, and formative years suicide prevention. every one bankruptcy emphasizes the societal context of genetic learn and illustrates how technological know-how may swap if cognizance have been paid to the desires of marginalized populations. Written by means of specialists in genetics, well-being, and philosophy, this e-book argues that the medical firm has a accountability to reply to group must guarantee that examine concepts in attaining a lot wanted healthiness affects.
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Extra info for Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
Investments in cancer genomics: who benefits and who decides? Am J Public Health. 96(11):1960–1964. 38 A C H I E V I N G J U S T I C E I N G E N O M I C T R A N S L AT I O N Gates Foundation. (2006). Global fund announces $500 million contribution from Bill and Melinda Gates Foundation. aspxx 2006. Accessed December 29, 2010. Global Forum for Health Research. (2009). globalforumhealth. org/About/10-90-gap. Updated 2009. Accessed November 10, 2010. The Global Fund to Fight AIDS, Tuberculosis and Malaria.
Indeed, in recent years, federal funding has grown only about 3% per year, an increase barely matching inflation (Mandell 2004). In contrast, the proportion of research that is paid for by pharmaceutical companies, medical device manufacturers, and other private-sector industry has increased at a remarkable rate over the same period. 4 billion in research funding—roughly 20% of total research funding. 3 billion on research, more than twice the amount spent by the federal government (Rampton and Stauber 2002).
Making Good on the Promise of Genetics 21 Brody H. (1993). The Healer’s Power. New Haven, CT: Yale University Press. Burke W, Kuszler P, Starks H, Holland S, Press N. (2008). Translational genomics: seeking a shared vision of benefit. Am J Bioethics. 8(3):54–56. Contopoulos-Ioannidis JP, Ntzani E, Ioannidis JP. (2003). Translation of highly promising basic science research into clinical applications. Am J Med. 114:477–484. Dougherty D, Conway PH. (2008) The “3T’s” road map to transform US health care: The “how” of high-quality care.
Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad